This course aims to teach people how to enhance the recruitment and retention of individuals from minoritized and marginalized communities in clinical trials. We begin by discussing the importance of diversity in clinical research, the lasting impact of past research abuses, and barriers and facilitators to research participation. Next, we explore community engagement principles, effective communication strategies, ways to increase community knowledge and awareness of clinical research, and outreach to community providers. Last, we discuss recruitment planning, person-centered consent, and retention. The course duration is listed as 8 weeks. However, you can work at your own pace and finish the course faster, if so desired. There is no cost to participate in the course; however, there is a fee for obtaining a completion certificate. Financial aid options are available.
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Faster Together, Enhancing the Recruitment of Marginalized Communities in Clinical Trials
Instructors: Claudia Barajas, BA
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There are 8 modules in this course
This lesson describes the need to include minoritized racial and ethnic groups in clinical trials. We review how low participation of marginalized communities in research affects health care. We discuss the lasting impact of past research abuses on people’s thoughts about research. Finally, we cover barriers to research participation and how to overcome them.
What's included
6 videos8 readings2 assignments
This lesson begins by describing the need to look at one’s own biases. Next, we review effective ways to engage with the community to make recruitment easier. We discuss the steps needed to make community partnerships. Finally, we show how community partnerships can increase recruitment of minoritized racial and ethnic groups in clinical trials.
What's included
3 videos6 readings1 assignment
This lesson reviews communication best practices. We discuss ways to improve written and oral communication. The lesson aims to provide the knowledge and tools to communicate more effectively with the public about clinical trials.
What's included
4 videos6 readings1 assignment
This lesson describes why it is important to involve the community in the clinical research process. We first discuss why it is important to raise knowledge and awareness of clinical trials in the community. We next explain how building trust and trustworthiness can promote community confidence and participation in research. Last, we discuss ways to raise community awareness about clinical research opportunities.
What's included
5 videos4 readings1 assignment
This lesson reviews how partnering with community healthcare providers can help boost participation of marginalized communities in clinical trials. We discuss concerns providers may have about clinical trials. We explain the need to build trust with providers. Last, we present ways to foster provider referral.
What's included
1 video3 readings1 assignment
This lesson discusses how effective recruitment planning can help increase participation of marginalized communities in clinical research. We begin by explaining the importance of having a diverse study team, experienced in working with marginalized communities. We next explain the need for identifying the intended community and incorporating their feedback in the recruitment plan. We discuss communication and recruitment methods, recruitment feasibility, and budgeting. Last, we explain the importance of pre-screening to help minimize bias and ensure that anyone who seems eligible is given the chance to participate.
What's included
4 videos5 readings1 assignment
This lesson describes how to conduct the informed consent process using a person-centered approach. We discuss the role of culture, language, health literacy, and support.
What's included
5 videos7 readings1 assignment
This lesson describes why retention of participants in clinical trials is important. We review common retention challenges that study participants may face once they agree to be a part of a clinical trial. Finally, we provide approaches to help with retention.
What's included
6 videos5 readings1 assignment
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University of Rochester
Johns Hopkins University
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